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| Photo Credit: AP. |
COLUMBUS, Ohio (AP) — The tattoos on Billie Stafford’s hands — inspired by street art and full of references to her work helping prevent drug-related deaths — have become an indelible memorial to the friend who inked them and the opioid crisis that killed him in April.
As a panel
starts considering how to distribute Ohio’s share of multimillion-dollar legal
settlements with drugmakers and distributors over the toll of opioids, Stafford
is concerned that most of the members don’t bring that same burden of personal
loss to their spending recommendations.
“They don’t
have to come and write 20 names on a (memorial) wall because everyone’s dying,”
said Stafford, whose friend David Seymour died of an overdose and who
co-founded a group that supports people addicted to opioids and their loved
ones.
Across the
U.S., people in recovery and families of those who died from overdoses fear
they won’t be heard on the state-level panels recommending or deciding on the
use of big pieces of proposed and finalized settlements, which are worth more
than $40 billion, according to an Associated Press tally.
The money is
seen as crucial to stemming a crisis that deepened amid the coronavirus
pandemic, with opioids involved in most of the record 107,000 overdose-related
deaths in the U.S. last year.
“If we approach this in a very educated
process, we have a real opportunity to move the needle for patients and
families for generations to come,” said Dr. Adam Scioli, the medical director
at Caron Treatment Centers, which operates in several East Coast areas.
After money
from 1990s tobacco settlements went to laying fiber-optic cable, repairing
roads and other initiatives that had little to do with public health, the
opioid deals were crafted to direct most funds toward combatting the drug
crisis.
The
settlements list strategies the money can fund, including paying for the
overdose reversal drug naloxone; educating children about dangers of opioids;
expanding screening and interventions for pregnant women; and helping people
get into treatment. State and local governments have leeway, though.
For the
people on a mission to stem drug deaths, the details matter. Advocates want to
see the money used to make it easier to get treatment, to provide related
housing, transportation and other services, and to provide materials to test
drug supplies for fentanyl, the synthetic opioid involved in most recent fatal
overdoses.
Two advocacy
groups are on a monthlong “Mobilize Recovery” national bus tour, partly to push
for representation of the recovery community — people in recovery, their
families, families of those who died, and those who try to help all of them —
in allocation decisions.
“The people
closest to the problem are also closest to the solution,” Voices Project
founder Ryan Hampton said.
In Ohio,
critics say voices of those most impacted aren’t reflected enough on the
OneOhio Recovery Foundation board making spending decisions. Only a few of the
29 members have disclosed personal experiences — one identifying as a person in
recovery for decades, one as the parent of someone with an addiction, and two
who said they knew people with addictions. Most members are government
officials. Just one is Black.
“Right now, we have no say-so and no
representation as to how this money is going to be used to help us,” said
Nathaniel Jordan, executive director of Columbus Kappa Foundation, which works
with low-income and Black communities, where opioid overdoses have been
increasing.
An advocacy
group sued the nonprofit OneOhio foundation in August over concerns about its
transparency. OneOhio subsequently said it would voluntarily follow open
meetings and public records laws that govern public agencies, though the
lawsuit remains pending.
“The Board
members are eager to engage the advocacy community and Ohioans whose lives have
been impacted by addiction because they know their feedback will improve the
Foundation’s work,” OneOhio spokesperson Connie Luck said by email.
The issue is
not only who has seats on key committees, but also whether those closest to the
crisis have clout.
Nevada
included recovery community members such as Debi Nadler on the council advising
the state on the more than $300 million it is expected to get.
“My true
thought is it’s a dog-and-pony show,” said Nadler, who founded the group Moms
Against Drugs after her son died of an overdose.
Terry Kerns,
the substance abuse and law enforcement coordinator for the Nevada attorney
general’s office, said the group is influenced by people in recovery and those
who work with people using drugs — and that some people appointed to seats not
set aside for those who have used opioids are also in recovery.
“I feel
there’s probably more than adequate representation,” Kerns said.
Advocates
say the shifting nature of the opioid crisis with the rise of fentanyl makes it
important to listen to people who are using drugs now.
“I’ve been
in recovery for years,” said Courtney Allen, the organizing director of the
Maine Recovery Advocacy Project, who was appointed to a settlement advisory
council in her state. “The substance-use crisis eight years ago was very
different from the substance-use crisis today.”
In
Wisconsin, Republican lawmakers thought Democratic Gov. Tony Evers’ administration
didn’t do enough outreach to law enforcement as it made plans for spending $31
million in settlement money for next year. So the GOP-led Joint Committee on
Finance this month eliminated proposed funds for family support centers and
trimmed other areas to set aside $3 million for public safety agencies to use,
including for treatment of jail inmates.
Rep. Mark
Born, co-chair of the committee, said public safety workers deal with opioid
issues even in far-flung communities not served by treatment facilities. “It’s
not just drug arrests,” he said.
Jesse
Heffernan, who is in recovery and co-owns an addiction recovery services
business, is wary of the changes, which he said were made without the open
input and research that went into the original plan.
“When it
turns into a partisan issue, communities lose,” he said.
Advocates’
push for clout has changed the situation in some states.
New York
officials announced in July that the Opioid Fund Advisory Board would make
recommendations on all settlement money after originally indicating the group
would not have a say on most of the $240 million-plus expected this year.
Board member
Avi Israel, whose son died by suicide after years of addiction, says the group
is still meeting too infrequently and not digging into the big decisions. He
worries most most money will end up going to state agencies.
“We’re
talking about a year before anybody gets any money,” Israel said, noting
thousands more could die before programs are launched or expanded.
The chair of
the New York board, Albany County mental health commissioner Stephen Giordano,
said he expects to have recommendations ready for the Legislature and governor
by the Nov. 1 deadline — and that having a report done earlier wouldn’t mean
money would go out to service providers sooner.
“I’ve also
come to see,” Giordano said, “that not everyone is going to like anything we
do.”
Mulvihill
reported from Cherry Hill, New Jersey. Kavish Harjai in Los Angeles also
contributed. Hendrickson and Harjai are corps members for the Associated
Press/Report for America Statehouse News Initiative. Report for America is a
nonprofit national service program that places journalists in local newsrooms
to report on undercovered issues.
For more AP
coverage of the opioid crisis: https://apnews.com/hub/opioids